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Cleveland Clinic |
Don Freeman
Member #5,110
October 2004
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I hope everything works out for you both. -- |
Onewing
Member #6,152
August 2005
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Good news, everybody! She's off the ventilator and they've taken all the chest tubes out (past few days of xrays have been good). My head is still spinning from last week's "worst week ever," but so far, this week has been mostly positive steps in the right direction. Although she is still in a bit of pain (she did have 4 chest tubes afterall), she is able to talk again. We've got to wait on the next CT scan (on Monday) to check the status of the abscesses on her liver. After that, it is a big question mark on what we should do. Hopefully have some time for her to enjoy a bit of Christmas with family, but then, we should probably go to a research clinic and see if we can't figure out what caused all this. You know, see if she is truly better.
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deps
Member #3,858
September 2003
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alethiophile
Member #9,349
December 2007
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Best wishes, good luck. -- |
Thomas Fjellstrom
Member #476
June 2000
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YAY! Thats great news. -- |
Crazy Photon
Member #2,588
July 2002
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Great! our strength is still yours, hope she recovers well ----- |
HardTranceFan
Member #7,317
June 2006
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May this be the good news you want for Christmas -- |
Evert
Member #794
November 2000
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Good news in deed! Here's hoping that you've been through the worst of it and can spend your holidays in a happy and festive mood. All the best! |
Jakub Wasilewski
Member #3,653
June 2003
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That's great! Merry Christmas to you both --------------------------- |
Ron Novy
Member #6,982
March 2006
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\o/ Yay... :') It's like a Disney Christmas story http://en.wikipedia.org/wiki/Fusobacterium Brush and floss every day to keep the Fusobacterium Necrophorum away. Also not getting bitten by an infected bum (and not making out with one at a bar No seriously... I hope things only get better from here. ---- |
Onewing
Member #6,152
August 2005
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Now that I'm getting more clear-headed, I'm starting to wonder if I should be angry. Maybe it's just because of 4 months of not knowing what was wrong plus three weeks in the hospital, but I'm feeling that someone majorly screwed up here. When she finally got admitted to the hospital, it was because her right lung was half filled with fluid. At the hospital, they did a ct scan to reveal the liver abscesses. Now, they immediately asperated some of the gunk from the abscesses and sent it off for research. However, we just sat in the hospital and waited during this time. After five days in the hospital, she took a turn for the worse and another xray revealed her right lung being completely filled with fluid. This is when all the bad things happened. My concern is, why didn't we put in a drain on the first week at the hospital? Why were we just sitting around? I've asked a few doctors (she has around 8 doctors on her case) and they've all said they were for draining her the first week. I've also asked who was in charge of this massive team of specialists, all of which have pointed to the internist (sp?) who's also the one person who hasn't come to see and talk with me. I don't know, maybe it's just time I hit the looney bin (give me my crazy crown back! (see sig)) after all that's gone wrong this year. Good news though, she may be able to come home tomorrow. There's still a few months of recovery expected. ------------ |
Crazy Photon
Member #2,588
July 2002
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Quote: she may be able to come home tomorrow. There's still a few months of recovery expected. This is what you should keep from this chain of thoughts and feelings But yes, conventional medicine has taken a turn for the worse in these years, usually doctors are too busy treating the symptoms and not the cause of the problem... By the way, do you have pets at home? my gf was telling me that animals sometimes are infected with Fusobacterium Necrophorum and it can be transmitted to humans. You may want to visit your local vet to administer it antibiotics. ----- |
axilmar
Member #1,204
April 2001
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Best wishes for recovery to your wife, Onewing! |
Ron Novy
Member #6,982
March 2006
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Not that I want to defend the doctors, the average doctor tends to get the tough questions wrong, but Fusobacterium is pretty rare... I don't think you're going crazy though. They should have acted more quickly, but doctors like to wait on test results and then shake hands with each other until everybody agrees on them... Not to really pry into your personal life (or your wife's), but did your wife first have a sore throat or was the first sign something else? ---- |
Matthew Leverton
Supreme Loser
January 1999
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Doctors aren't really like the ones in House, holding pow-wows until they accidentally stumble across the cause thanks to a bad pun by the janitor. A few seconds later, the patient is feeling great, and it's time for a commercial break. But to put this into perspective, as a friend of mine who recently had (and was promptly treated for) an infection of sorts that spread throughout his face and neck said, "Just think, even if I had lived only 100 years ago, that would have killed me." Of course it's best to never get ill in the first place, but it could be a lot worse depending on where and when you lived... So if she has a full recovery (which we all hope she does!), you can at least be thankful for that. |
Don Freeman
Member #5,110
October 2004
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Yeah, they don't call it medical "practice" for nothing.:-/ I am glad she is doing better...I hope you all have a Merry Christmas and a Happy New Year!:D -- |
wearetheborg
Queen of the Universe
June 2003
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onewing said: Now that I'm getting more clear-headed, I'm starting to wonder if I should be angry. Maybe it's just because of 4 months of not knowing what was wrong plus three weeks in the hospital, but I'm feeling that someone majorly screwed up here. You have every right to feel angry, but I'm not sure if you should be directing that anger at anyone (doctors in particular). Your wife is doing well now because of the doctors. We can't expect them to be experts at every single disease that presents itself, and it seems (from what you have told us) that your wife has some sort of rare condition. From what I understand, it doesn't sound like they were waiting for her to die. They weren't being lazy either. This case just needed that much time. Focus on staying positive for your wife Onewing, because now that she has this second chance at life, I'm pretty sure that the last thing she wants to see is an angry husband. I KNOW that you are happy to have her back with you, so focus on showing her how much you love her. God bless you.
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Onewing
Member #6,152
August 2005
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Quote: By the way, do you have pets at home? Yes, would they show signs of being infected or could they just be carriers? Ultimately, I don't have any personal anger towards anyone, except maybe the internist (once again, sp?). The doctors were great, talking with me, calling me at night with what they researched. However, it's very easy to get blind-sighted by all that's happened and not realize somebody has made a mistake somewhere. I might just take this whole case to a medical lawyer and say, "I'm not on a personal vendetta, I just want to know if anyone has made a mistake, and if so, see if we can't get them to pay whatever bills they've sent us." If nobody has made a mistake, then so be it, on with life. ------------ |
Matthew Leverton
Supreme Loser
January 1999
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Every time you say internist, I cannot get the picture of an intern from the Scrubs out of my mind. Why is he in charge?! Sorry. While I would be upset if there was gross negligence (e.g., coming home missing a limb), an honest mistake wouldn't anger me. Obviously I have no idea if either is true in your case. |
Ron Novy
Member #6,982
March 2006
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Internists / specialists usually specialize in one area or one organ and what causes it to fail or malfunction and are not always the best to diagnose a domino effect of failures in the body. What you need in that case is someone with actual real experience making differential diagnosis of the entire body... With rare cases where people lack experience they try and rely on others to guide them, but what if there isn't anyone there willing to be the guide? Chaos, and lots of handshaking... ---- |
Crazy Photon
Member #2,588
July 2002
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Quote: would they show signs of being infected or could they just be carriers? We will investigate, but apparently they can show signs of infection - will update after Christmas. ----- |
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